How to be Healthy When You’re Sick

I’m trying to find ways to be healthy despite the fact that I constantly feel like I’m dying.

Having chronic pain is like waking up every single day feeling like you’ve just been mugged, then hit by a semi-truck, and simultaneously come into contact with the plague.

And when it first hits you, you’re like, “I can’t be expected to function under these conditions. Nobody could function under these conditions. I must call in sick to life.”

But after a month of laying on the couch watching every episode of Burn Notice three times, you suddenly realize you’re probably not going to be getting better any time soon, so maybe you should try to, you know, shower or something.

That’s where the drugs come in. And suddenly, you wake up one day and you’re literally taking six different medications before you even get out of bed in the morning. But hey! At least you’re getting out of bed.

And over the next few months or years or whatever it takes for you, you just sort of live in this drugged-up state of barely existing. It’s how I would imagine high school pot heads hope their life turns out, except without all the stupid stabbing pain in my ribs (or wherever yours may be).

Aside from being high daily, you find all the shortcuts you can. For me, I ended up working from home. I moved in with my mom because doing my own laundry and washing my own dishes is literally too difficult. I shower once a week to save my energy. I shop online. And I never, ever, ever wear high heels. Ever!

On one level, I’m just happy that I’m no longer in so much pain that I literally hope I don’t wake up alive in the morning. But on another, I don’t really like what I see when I look down the long, dark road that’s probably going to be my life for, what? Another 50? Or even 60 years if I’m terribly unlucky?

Which brings me to the yoga. Yes, it’s true. I have started doing yoga. I’m hoping this is the next stage in the chronic pain life cycle, which will be followed quickly by, “Find a cure, and live happily ever after.”

While I’m here though, barely living, I figure I might as well get really good at downward dog. I started with a 30-minute PM yoga session for beginners on DVD. The hardest part is when I had to take two deep breaths in a plank pose. And, guess what? It didn’t suck.

I mean, I can admit when I’m wrong. And I was totally wrong about yoga. I really, really thought that bending my body in new, crazy ways would only make things worse. It’s just the human intuition in me, saying, “You’re in pain, stop doing stuff.” But, with chronic pain, you have to learn to override that voice.

And so, I’ve even done the 30-minute AM session, and I didn’t even die from that either. Plus, I also found another DVD by the same soothing instructor that’s 51-mintues long, and I did that one too, all without any trips to the hospital or anything! I’m pretty excited about the whole situation.

After each session I feel really relaxed, and it seems like I’m going through fewer pain pills when I do the yoga as opposed to when I don’t.

I’ve also started drinking tea. Back in the day, when my body didn’t hate me, I used to say things like, “Tea is literally just dirty water. Ick.”  But now, I’m sicker and wiser — and I need to find ways to bring a sense of peace to my wounded body.

So, yeah, tea. It’s got to be better than Coke, right?

There’s a morning tea that seems to ward off the overwhelming feeling of being high that the meds give me. And then there’s a night tea that helps me poop — something I’ve really missed doing ever since my prescription pills took that seemingly natural bodily function away from me.

Truth be told, I am secretly hoping all these new changes will help me lose some of the 50 stupid pounds I’ve gained since getting sick. But if they even help me do more than shower or something, I’d be cool with that too.

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My affair with opioids

I’m at the doctor’s office. It’s the second week of February, 2013.

She thinks the sharp pain in my ribs is from an ulcer. Probably the result of taking 20 to 25 Advil a day for weeks on end when I get one of my headaches.

I’ve been getting the headaches since I was in college, but all the doctors I’d ever seen had brushed me off when I told them I could put the pain at bay by taking a few simple Advil.

This doctor says they should have asked me a follow-up question: “How many Advil, exactly?”

So, yeah, the Advil is out. At least for now.

“But what if I get another headache?”

“Here. Let me write you a prescription for hydrocodone. Take one of these if it gets really bad.”

***

Read more “My affair with opioids”

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Why I love my doctor

People are always asking me why I drive two hours, one-way for a doctor. I mean, it’s not like I live in the middle of South Dakota (anymore) — there are plenty of other doctors right here in Illinois, some of whom are even in my hometown.

The only way I can explain it is to tell you that I drive two hours, one-way to see the most amazing doctor I’ve ever had because over the last two years I have seen so many of the worst doctors I’ve ever had.

And, if I had been a patient of one of those doctors, I probably would have ended up in the hospital instead of Black Friday shopping at the mall with my little sister.

It all started because I was up for a refill on my super strong pain pills, which the federal government has decided are so potent that I am required to get a written prescription for it every single month lest I become Pablo Escobar.

Usually this just means that my doctor mails me the prescription, because we both agree that a four-hour round trip for a piece of paper in 2014 is ridiculous.

But this month, my doctor decided to mail the prescription directly to the pharmacy instead. Something about how if a carrier goes postal, or someone robs the mailman, then I won’t have any issues because they can just re-send it to the pharmacy — something they couldn’t do if they sent it directly to me.

And since my doctor is basically my “dealer” and therefore holds all the power in our relationship, I said, “Fine. Whatever.”

Except, like a week went by, and the pharmacy kept telling me they never got the prescription in the mail. I assumed it was because of the Thanksgiving holiday messing up the mail schedule, but by Friday I was completely out of all my pain drugs and was starting to go into withdrawal.

In other words, I was literally thinking about killing myself by downing a bottle of sleeping pills. Seriously, that’s how quickly things can devolve when you suffer from non-stop chronic pain.

And the pharmacist was all, “Yeah, no, they can’t call in a morphine prescription. Sorry.”

In the olden days (a couple months ago) my doctor could have just called in a hydrocodone prescription to hold me over. But alas, the federal government has deemed that drug too hardcore as well, and now a written prescription is required for it too.

And so, as I was trying to decide whether I would attempt to live off unhealthy amounts of Advil for the next few days or just kill myself, I thought maybe I should give my doctor a call and just check to make sure there’s really nothing he could do.

In the back of my mind, I kept trying to remind myself that my amazing doctor had always come through for me before, and that I had no reason to doubt him now.

I mean, he’s so amazing, that if I ever run out of pain pills early, instead of pointing me toward a drug rehab center, he actually asks why I came up short and then tries to figure out a solution so it doesn’t happen again next month.

And, during appointments, instead of staring blankly at a screen typing everything I say without listening to a single word, he actually listens to me and all my stupid questions, and even engages in a two-way conversation. There’s usually even eye contact! Crazy, right?

He’s also the kind of doctor who, when I showed up at his office after three endless days of insane breakthrough pain, instead of handing me some Aleve and a pain specialist referral to get something stronger, he actually gave me a pain medication shot right there on the exam table.

As it turns out, he’s also the kind of doctor who’s able to order a 3-day emergency prescription of morphine over the phone, so that I can make it through the next few days without dying.

The relief that flooded my heart and soul when I found out that I was wasn’t going to have go through hell, agony, withdrawal and a pain spike waiting for the postman is hard to explain.

I mean, I didn’t even know emergency prescriptions were a thing that could be done. Luckily, because I have an amazing doctor though, I didn’t need to — he was already on it.

I still don’t actually have the full prescription because it turns out that my local, small town pharmacy requires doctors to send prescriptions to a P.O. Box instead of their main address. However, my doctor’s nurse knew nothing about this, so now the prescription is probably on its way back to Wisconsin with “Return to Sender” stamped on it in big red letters.

But, the nurse told me today that they’ve sent another prescription, this time to the right address, and in the meantime, they’ve also sent in another 3-day emergency prescription to hold me over.

I can tell you from all of my experiences from horrific doctors, that most of them would have just shrugged their shoulders in that situation, and silently judged me for being a druggie, and told me to wait for the mailman like a good little patient — withdrawal and pain spikes be damned. Or, they would have insisted that I get in the car and make the 2-hour drive to Wisconisn right then and there to pick it up myself, despite the fact that without pain meds a drive like that would have left me for dead for like a week.

So, when people ask me why I drive four hours, round-trip to see doctor, I just nod my head, smile and say, “Well, he’s the best there is,” and leave it at that.

Because I know in my heart that he cares about me, and that’s more important than proximity any day of the week and twice on Sundays.

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