How are you?

Everyone is always asking me, “How are you?”

And not like in the, “How are you doing today on the glorious sunny Saturday afternoon” sort of way, but more of the, “How are you feeling because you’re always posting on Facebook that you’re in pain and stuff?” sort of way.

And if they ask me in person, they always have this weird look in their eye, like they’re confused by the fact that I don’t really look sick.

Well, I feel like I’m dying pretty much all the time, that’s how I’m doing.

I feel like hell.

I wake everyday feeling like a butcher knife is in my right ribs. And the pain is so horrible that it literally wakes me up in the middle of the night, like a demon that has entered my body.

It’s awful.

I feel like sh*t.

And that’s usually what I tell people.

“I fell like hell.”

When the pain pills are working, my answer shifts to, “I’m doing alright, but it’s only because of the hydrocodone.”

I think that response kind of embaresses my boyfriend though. He’s always hushing me. Telling me to stop telling everyone I’m on drugs.

I feel like it’s important to note that though. I feel like people should understand that the only reason I’m currently able to stand upright and have a conversation with them is because I’m on a constant stream of opioids.

Lest they think I’m cured. Or they think I’m not that sick.

Or I don’t know.

I guess it doesn’t really matter what they think.

But I feel the need to tell people. To put it out there: I’m in pain. All the time. And if I’m not, it’s only because I’m on drugs.

I suppose maybe it makes people uncomfortable when I respond that way.

But maybe, one day, someone will say, “How are you?” and I will finally be able to smile and say, “Good.”

And when I say it, I will be able to mean it. And they will know I mean it.

Because I wouldn’t say “Good” if it wasn’t true.

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Some thoughts about my drugs.

I’m having a pretty good day.

And by that, I mean, a pretty good “pain” day. That’s how my whole life is defined now.

Yesterday sucked though.

Yesterday I was in agony.

I think maybe it was because my birthday on Friday and my boyfriend came out to visit, and my whole family took me to Olive Garden for dinner, and maybe it was all too much for me and I was paying for it on Saturday. Or, maybe it was the weather. Or maybe it was because the fan in the living room was blowing at some crazy angle.

Or maybe God was just p*ssed off at me.

Whatever the reason, the pain was awful, and so, I ended up taking extra hydrocodone.

I’m supposed to take “one every six hours,” but I’ve been taking the stuff for months now, and many, many times “one every six hours” has the same effect as an M&M would.

Sometimes that means I end up taking “one every four hours.” Other times that means I end up taking “two every six hours.”

But then, every couple of days, I have to sit down and count out how many days I have left until I can get a refill, and then count out how many pills I have left and divide the two and start rationing it out.

As of right now, I have about three pills a day to get me to my next refill.

I already know that’s not going to be enough.

Here’s the thing, it’s not that I used to judge people who used excessive amounts of painkillers in the past. It’s more that, before I got sick, I just never even thought about them.

But now. Now, I sit down on Sunday mornings, open the orange prescription bottle, dump out the pile of powdery white pills, and count out each individual one, and by extension calculate how much pain I will have to endure over the next three weeks.

I already know that there is no way I can get through the next three weeks with three pills a day.

My plan right now involves one part prayer, and two parts new doctor, who I see Sept. 10.

But, my experience with medical professionals thus far though has been, “Oh well.” As in, “You better find a way, because as long as you’re not bleeding out, it’s not our problem.”

But that’s the thing, it really, really does feel like someone is stabbing me with a butcher knife.

I have endured the worst pain in my entire life over the last six months.

Pain that makes me consider suicide on a daily basis. As in, I seriously plan out how I can kill myself. As in, I was seeing a psychiatrist who specializes in helping people who deal with chronic pain because I was fantasizing about driving my car off the road or swallowing all my pills before I went to bed at night.

I am in that much pain on a regular basis. And I am not exaggerating when I tell that you that there are things in this world worse than death.

But because I am not visually bleeding out, because my blood work comes back normal, because nothing ever shows up on any MRIs, I get 120 hydrocodone a month, and no more.

If someone rushed into the ER with a gushing stab wound, they would never be denied the pain relief they need.

Or maybe they would. But that would be tragic.

Because pain eats at you. It messes with your head. And it changes you so much faster than you think it will.

And there is a pill out there that can take my pain away. And I don’t want to take it so I can get high. I don’t want to take it so I can feel like I don’t have any troubles, or like I’m floating or whatever.

I want to take it so that I can get some relief from the metal claw digging into my ribs and maybe think clearly enough to see into tomorrow and remember that I do want to keep on living.

It’s so, so easy to sit on the outside of pain and judge people though.

It’s easy to say things like,

“Well, you can’t just depend on the pain pills, because you’ll end up building a up a tolerance to them, and then where will you be?”

Or,

“You need to take the number of pills the doctor tells you to take because that’s what the doctor says and that must be right and he must know exactly how many pills it will take to take your pain away without giving you a drug addiction.”

But that’s all bullsh*t when you’re in so much pain you want to kill yourself.

When you seriously want to end your life because you cannot handle the amount of agony that has engulfed your right ribs, the very last thing you give a crap about is the possibility that “two hydrocodone every six hours” instead of “one hydrocodone every six hours” might lead you to a life of pain pill addiction.

Or maybe you are different.

Maybe you would have a clear head and think differently in that situation, and maybe you would be able to endure hours and hours of the worst pain you’ve ever experienced, while a bottle of hydrocodone pills that could give you the relief you need were sitting right there on your dresser, and maybe you wouldn’t reach for them.

But I doubt it.

Pain Pill Bottles

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My letter of resignation from the church

Editor’s note: On Sunday, June 30 I announced that I will be resigning from my role as youth leader at Crossroads of Faith UMC as a result of my health issues. I will be moving in with my mom and sister who live near Rockford. Below is the letter I read to the congregation. 

I never felt like I chose to be a youth leader here. From the second I interviewed for the position, I knew I was called to serve in the role.

I interviewed in front of what seemed like 45 people on the staff parish committee in the farmhouse, which was about 94 degrees that day because it lacked air conditioning. It was all pretty much a blur except that I remember looking down to the end of the table, past all the members of the committee, and seeing the most reassuring smile I had ever seen in my life. It was Pastor Wes. And his eyes let me know that everything would be all right.

That night, after I left here, I barely slept. I had never felt such a strong call from the holy spirit in my life and I knew in my heart that I would get the job, even before Wes called to offer it to me the next day.

And so, when I got here, I stayed.

I stayed even when I saw a mouse. I stayed even though the church met in a tent and the youth group met in a barn. And I stayed even though the work was sometimes grueling and exhausting and difficult.

And I loved every single second of it.

I loved it when somehow, by a miracle of God, 12 kids went on the very first mission trip to Oklahoma. I loved it when 18 went the next year to Denver. I loved it when they all got back and ran up on the church stage and shared their excitement with the rest of the congregation.

I loved it when the youth pulled me aside and trusted me enough to share their deepest secrets and heaviest burdens. I loved it when they would text me after night group and tell me that the lesson was exactly what they needed to learn that night. And I really, really loved it when we’d all sing together, with our arms crossed over each other’s shoulders, standing as if to say, “They will know we are Christians by our love.”

As many of you know I have been pretty sick since February. Feb. 3 to be exact. I remember because it was the Super Bowl. And I woke up that day with some pain on my right side. Then, the next day I went to the emergency room. Since then I’ve seen four different specialists, I’ve gone to an average of two doctors appointments a week and I’ve gotten to the point where I’m now taking 19 pills a day.

My current diagnosis is intercostal neuralgia, which I assume is latin for my it feels like there’s a butcher knife in my right ribs — all the time. Unfortunately, all the doctors at all the hospitals I’ve sought treatment at have yet to figure what is causing this horrible pain.

I cannot tell you that either.

What I can tell is what it has done to my life.

In five short months, it has chipped away at every single aspect of it. It has literally made it difficult for me to do my own dishes, or wash my own clothes. Some days, the pain is so horrible that I literally do not get out of bed at all.

I feel like I went from 100 miles an hour to 3 miles an hour in one second and the shift has been incredibly jarring.

Sadly, this pain has also taken away my ability to lead the youth at this church. It started with small things. At first, I was skipping first service or missing leadership meetings. But now, I’m at a point where I can barely get through the morning group and I will no longer be able to do the evening group.

And so, it with more sadness than I can possibly express, that I am announcing my resignation from the role of youth leader at this church.

Things have lined up for me to go live with my mom and sister in Rockford and I will be moving out of my apartment in August. My last Sunday with the church will be August 11.

I am still planning to go on the mission trip to Alabama. We will be taking an extra adult, so that I will be able to rest during the day and then simply be with the youth in the evening. I know that it will be hard for me to go on that trip, but I want to go and I refuse to let this pain take that away from me.

I  truly hope everyone knows that I did not make this decision lightly and that I did not go down without a fight. But I have realized that I am truly too sick to continue in my role and that I need to take some time to be with family now and hopefully work on getting better.

Personally, I would appreciate your prayers for healing. But more than that, I would appreciate it if you could please, please pray for the youth during this transition time. Change isn’t easy, no matter how old you are, and I know that the next few months will be difficult for them. I love the kids here more than I thought was possible and I am truly sorry I have to leave.

Thank you for having enough faith in me to allow me to serve here for the last three years.

Love and prayers,

Crystal

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