Comments

  1. Did you watch that show, “Journeyman”? It was about a reporter that would go back in time, but never had time to write stories. I use to think, “Hey, they should fire that guy!”

  2. I just wanted you to know that I found a guy that married me even though I had chronic pain and was on lots of medications and couldn’t do a lot myself. With doctors supervision I had a happy and healthy baby even though I took pain medications during the pregnancy. She suffered no ill effects OR any withdrawal symptoms. My friends pitched in when I had the baby and going to childcare and playgroup and now school helps a lot when you are sick – you get breaks. Please don’t think you are less of a catch because you have chronic pain, you are a beautiful and obviously intelligent woman, don’t think you are less worthy than others for children and marriage, you are fantastic the way you are. Take care of yourself and love yourself authentically. Regards

  3. Crystal, I suffer from the same chronic pain you do right side, have every test and treatment know to man and since the DEA change my Dr will not fill my meds and I mad a mistake and took one pill of another sufferers and forgot now not a pain clinic will accept me. I cry all day everyday I wish I knew of someone who could help me get my meds back. I can’t live this way. Thanks for your writings.

  4. Hi Crystal, thanks for your blog. It was encouraging to read. I’ve had chronic muscle spasms and costochrondritis after a chiropractor injured my ribs four years ago. It was difficult to breath with constant pain and discomfort. No one believed me, I felt like I was drowning and lived in a fight of flight mode. People told me to calm down, told me it sounded like anxiety, told me to “just take a deep breath”. I went to so many doctors. Finally I found one that listened to me. I had cortisone injections every few weeks and more chiropractic adjustments. Nothing helped. I lived off a muscle spasm medication. Finally this summer I had an intercostal nerve block. I didn’t think it helped but after a couple months my muscles atrophied in the chest. I still don’t know if it was the constant cortisone injections or the nerve block that made the muscles atrophy, but when they did the muscles released and I could breath again, not perfect because the atrophied muscles are respiratory muscles, but so much better. I’m still anxious all the time that its going to come back. I found your blog googling about intercostal nerve block. I hope your condition hasn’t returned and hope you’re doing well.

  5. Hello Everyone,
    I came across this blog while doing research for a power point presentation. You see I do free demonstrations for my community on pain prevention. My life goal is to offer pain relief to everyone I can. After reading what people had wrote about the pain they deal with really makes me sad, but even more determined to help people in physical pain! I wish everyone the best of luck and encourage people to just read my reviews from pain suffers and know that if you can find the ideal body worker(not relaxing Swedish massage), it can be life changing! You can read reviews on http://www.hapticmassage.com
    Alan

  6. Hi Crystal,
    Please tell me about intercostal pain, this is a new topic for me. I had Googled “pain will drive you insane” and found you that way. Last night the pill bottles looked tooo good. Hugs m’dear.

  7. Hi Crystal, I just found your website and don’t know if I should be crying for you or laughing at how funny your blog is. I think its awesome. So candid and funny. I forgot my cymbalta on a trip last week, and am now going to get an MRI of my brain because I am getting vertigo and kinda mild brain zaps. Had no idea it could all be related to the cymbalta. I hope you are well, Mark.

  8. Hi Chrystal, I know you haven’t updated in awhile, but I’m hoping you will see this and respond. I too have EDS, I was diagnosed in Indy years ago, but got the diagnosis and that was it! No follow up or help. I’m having a lot more symptoms now that I’m in my 50’s and I really need a doctor that understands this friggin disease to help me. I live in Illinois as well, Southern, but would love to know the name of your physician, because it would be more than worth my drive to get real help. Thank you so much. Dara67@gmail.com

  9. Hi Crystal. I just read An Open Letter to all the Doctors who missed your EDS. I truly feel for you. I was diagnosed in Nov of 2018 with EDS. How are you doing now? I haven’t had time to read your blog yet, but wanted to let you know that I can sympathize with what you said about the doctors that had treated you. There seams to be a severe lack of simple knowledge across the medical profession about EDS. And the truly sad thing is there is so much information on the subject available. Sincerely Angelica

  10. Crystal, your blog is emulating my life and I turn 60 years this August. My kids are adopted and my career thst I LOVED is destroyed and just last week over the phone no less! I was told I have hyermobility syndrome! I HATE the Mayo. I have been told I need psychiatrist though I have been seeing one for 15 plus years. The insults and unbelievably bewildering damage that has been done to me by MDs and chiripractors is spot on with what you say in your blog. Having said all that I want to assure you that you aren’t alone and that if you want to be a Mom, you will be able to. I wish I could write to you or talk with you privately. I can’t find an email for you. But you have mine now so feel free to reach out

  11. Crystal,
    I read your opioid withdrawal piece. I have to tell you, I was taking up to 150 to 300 mgs per day. Insanity. I got hit by a drunk driver and was prescribed oxycodone for pain. My dependency escalated into something I never thought imaginable. Anyway, for years I feared the withdrawal of trying to stop. After much research, I found a product called Opi-Cure (now called Opi-C). I had little to no hope but I was completely broken and tried it. Honestly, it was a complete miracle. It got me over the hump of all the withdrawals symptoms except for some continued sneezing. But, no joke, it literally saved my life, which is exactly what many of the people who have reviewed the products said about it. I DO NOT work for or with this company is any way. I’ never thought anything like this was possible. That product changed my life completely. Just passing it along.

  12. You quit writing, or are you writing somewhere else? I’m old but the facet joints on the left side of my neck just popped out as a result of a neck injury suffered long ago. So, I’d say my well being is pretty fucked. I hope you are still writing.

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